the event for Kirsten Edwards has been ranked by her mother work colleagues a rock music night is being held to help a Powys teen with a rare disease that attacks of its organs.Kirsten Edwards, 17, of Llanerfyl, near Welshpool, has had of Wegener Wegener, who attacks from many parts of the body, for five years.
Different local bands perform in Brymbo Cricket Club, near Wrexham, on Saturday to help raise ￡ 2500 for a wheelchair specialist for her.
The event is organized by colleagues of her mother.
Kirsten was a normal 12-year-old when she came home five years ago with a toothache, and her mother thought they might try to Dodge school.
But Kirsten went to bed ill, and there was still six months later.
???Continue reading the main storythey a perfectly healthy 12-year-old who had never been in the hospital was, it was simply horrible "end quote Julie Longmuir Kirsten van mother her illness means only 50% of its kidneys work properly, it has holes in her lungs and deaf is because the illness the bones in her ears has destroyed.
Swollen joints the painful to walk and, although she has a standard wheelchair, they can't use.
In an effort to help her, her mother Julie Longmuir work organize colleagues a rock night to raise money for a purpose-built wheelchair, Kirsten without the help of her mother function can.
"She was a perfectly healthy 12-year-old who had never been in the hospital, it was just awful," said Ms Longmuir, 48, who works for Sma rtc are care centre in Wrexham teach.
She added: "the disease is very rare. Kirsten has been on the internet and talk to two other girls, in Canada and the USA, which have the same thing. "
The fundraising event is the brainchild of the Ms Longmuir work colleague, Ron Adams. As a member of the AC/DC cover band The Swillers approached he other bands to see if they would help.
Four other local bands, Marblehead Johnson, Blind Justice, Thunderpig and Revolver, also run, and everyone is giving their services for free.
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